Archive for November, 2008

I bet she thinks I forgot but I didn’t.

A week ago, I tweeted that I was looking for someone who would offer their services of web design to help me create a simple website for Zoe. I got some awesome responses.

Erica, though jumped right in with questions on what I was looking for and how I wanted to do it. I had already bought the domain and had a theme picked out that we could modify so I really needed someone who could go in and do the techy stuff that I couldn’t do.

Of course I couldn’t do this without involving Zoe… she supplied the artwork and she had the final say when it came to picking the header and button.

It’s my extreme pleasure to thank and introduce you to Erica Mueller, who stepped right in without hesitation and got to work. She was patient with us and has since provided me with some other great ideas, which as soon as I get a spare minute, I’m going to start on.

Erica has given a link in the sidebar where you can reach her but I also want to direct you to fishbowlsense.com where she blogs and tackles life – all the while helping a little girl have a great site to call her own! Also if you are on twitter, give her a follow @fishbowlsense and thank her for being so awesome and giving of her time!

Thank you Erica! You have no idea how much this site means to us.

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I spoke to my sister last night after she posted and suggested that she send me the pictures to see if I could upload them from home.

I spent a few hours with Zoe yesterday and helped her through her popsicle ordeal. It all came down to wanting to chew on something. I guess after nearly 72 hours of vomiting, the last thing you want is more liquid. Either coming in or going out. The need to chew was strong for her. So as the orange popsicle melted, I sifted through to find pieces still solid enough for her to sink her teeth into. It must have felt good knowing that she was practicing for getting her little choppers on a cheesburger.

These are the pictures she wanted to share with you all:

This next one was after I left yesterday:

sleepy baby

sleepy baby

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Still here. Modern technology keeps me connected. It also lets me take pictures and post them here which I’m going to do since everyone likes to look at pictures.

Quick update first. Zoe’s IV was giving her some problems so they pulled it today. They were going to start a new one but her veins have become so fragile that it just wasn’t possible. EMH blew 2 trying to get the IV she had started. 1 in each elbow. The Dr. here blew 1 in her left hand trying to get the new started and the old one was in her right hand. So they had a bit of a problem. How to get her fluids and how to get her medications. Dr. Boyle (her cardiologist) is crazy optimistic and decided we were going to see how she fared orally today. If she manages to drink enough fluids and keep them down she wouldn’t have to get stuck again. He also made her a deal, if she could keep down an entire popsicle or a cup of broth she could have a little of the 1 thing she wanted so desperately……….a cheeseburger! Aunt Nikki was here to witness the popsicle frenzy. lol She devoured it and kept it down for the required hour. So as I blog she’s letting a little cheeseburger and some gatorade settle and couldn’t be happier. Her next hurdle is the treadmill tomorrow and if all goes well we’ll be on our way home soon.

I stand corrected about the pictures. Aparently the network I’m connected to through the hospital is SUPER picky about what you can do. The link to add media to the post is not an option so we’ll have to wait until we get home. Sorry.

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I’m blogging tonight from the hospital. Last night Zoe was throwing up again and was complaining that it was hard for her to take a deep breath. Mike took her to ER in Elyria and since I was down the street at work I met them there. They decided Zoe would be best observed at the Clinic so they sent Life Flight for us. It was the first time in a helicopter for both of us. She loved it, but I have to say I’m not a fan.

Her Dr. paid us a visit this morning and he’s concerned. He suspects her vomiting episodes are realted to activity. Whatever the cause, it’s an indication of worsening heart failure and it means she’s in more danger than we thought. He wants to test the theory so on Monday he wants to stick her a treadmill and see what happens. Based on those results he will decide if we stay here and wait or go home and wait.

While we’re here he plans to finish the rest of the work-up and get her on the list either as a stage 1 (in hospital wait) or a stage 2 (seen outpatient and wait at home).

So my new residence at least until Monday is the Cleveland Clinic. Please forward my mail.

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