Quick update: Zoe had her biopsy on Monday. The results were the same. Level 1a, minimal rejection with no tissue damage so she still falls into the no rejection category. Her broviac also came out Monday so she’s tube free! No more wires, tubes, etc… She took her first bath in 3 months on Tuesday morning. Miss Sherri at the hospital gave her some body wash/shampoo/bubble bath from philosophy that smells like chocolate chip cookies so Zoe has been walking around smelling good enough to eat for the last few days.
Today we went in for an appointment with Dr. Boyle. routine stuff but we had a important question: When do we get to go home? Dr. Boyle’s response? “How soon can you pack?” YAY! We hauled booty back to RMH to pack and clean up. We arrived HOME at about 5:30pm. It took forever to get 3 months worth of stuff put away and a trip to the grocery store was imparitive. Gabe is back home as of tonight too. Everyone has their jammies on and is getting ready for bed….IN THEIR OWN BEDS! But first, Zoe would like to say a little something:
hi this is zoe. i am home. this is my 1st time on my website. goodnight.
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Obviously we’re out of the hospital. Zoe got discharged, again, on Sunday. We went on a little adventure and found a Bob Evans and a Walmart in Mayfield Heights so we got some dinner and did a little shopping.
She’s on 2 medications for her blood pressure. A clonidine patch that we change every Monday and norvasc that she takes with her morning medicines. I’m monitoring her blood pressure 3 times a day per Doctors orders.
We had our first outpatient appointment today and it went well and it had a media following. She has her next biopsy Monday and her broviac will be taken out that same day. She’s excited because that means a regular bath for the first time in over 3 months.
We’re making the best of our time here in Cleveland. We go on “adentures” whenever we can. Tonight we found the best milkshake place ever called Tommy’s, recommended to us by Lisa at the hospital. We also found a place called Coventry Cats that has neat stuff for cats and dogs so we’re going back there when it’s open to do some shopping for Fudge (our cat). We should still be able to leave in about 2 weeks. If my calculations are correct, the 20th of January.
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I promise I’ll update a little later but I promised my celebrity daughter she could have my laptop to play on for awhile. I just wanted to leave a quick note to let everyone know that channel 8 did a follow-up story on Zoe today at her appointment with Dr. Boyle. You can see Zoe and Dr. Boyle here.
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Just so everyone is aware I just asked Zoe if she’s ever said to anyone that she wishes hadn’t gotten this heart or that she wished she had gone to heaven. She looked genuinely confused and asked why I would ask her that. She saw that I was here on the site and asked if someone had written that here. I told her no, that someone said she said it. I told her I thought the nice lady was confused but needed to ask her first. She said no, she’s never wanted to be in heaven and she’s very glad she got her heart. She got a little teary eyed at the thought of being in heaven, but assured me she’s never thought it let alone said it.
So thank you mystery lady for upsetting my daughter. Fear not followers of Zoe, I’ve fixed it and she feels better. However, she is also irritated with the mystery gossiper and anyone who knows Zoe can verify that Zoe is not someone, regardless of her age/size, that you want irritated with you.
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We’re still in the PICU. Should be moved to the step-down unit tomorrow. She’s completely off the IV meds and on an oral anti-hypertensive. Dr. Sterba wanted to monitor her bp today and overnight to make sure it’s stable. So far so good. It hasn’t gone over 120 systolic (top number) all day. I’m crossing my fingers that we can get back to RMH by the weekend. Zoe is bored out of her mind. She can’t walk around in the ICU so she’s ready to get the heck out of here. That makes 2 of us.
I need to reiterate a request I made once before. Please don’t spread rumors/insight panic on behalf of my daughter. A women from First Baptist Church (I don’t know her name) went into Chestnut Ridge Baptist and spoke with someone ( I believe it was my best friends Aunt Lisa) and said that Zoe was back in the hospital because she had a seizure. That part is true but it’s the next part that bothers me and has prompted me to bring it up. She also said that Zoe said, to whom I have no idea, that she wishes she never got a heart and that she wishes she was in Heaven with God. She then went on to say this is so hard and really affecting her poor mom. Ok, I have to be honest I’m very irritated by this whole thing. First, my daughter is more than happy to have a new heart and be alive. She’s never said anything otherwise. Even if she had, that would be incredibly personal for our family and I certainly wouldn’t want it spread around. Second, while this is hard it’s not affecting “her poor mom”. Her “poor mom” is completely fine. Anyone who knows me can attest to that. I’m the rock that keeps it together, that’s my job. Zoe had a major surgery for crying out loud. While the set backs are disappointing they are to be expected. I’m not afraid for her and I can promise I’m just fine. The women who said all of this is the same woman, or so I think, that went into the same church and said Zoe has 12 hours to get a heart. I’m in the process of finding out who she is so I can find out where she gets her information. So I’d like to ask, again, that we not spread things that haven’t been confirmed. If you don’t read it here, it isn’t true. Thanks again.
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