Archive for March, 2009

There was a light at the end of the tunnel…..too bad it was a faulty light bulb  illuminating a dead end. (sigh) What are you gonna do?

Zoe’s viral count was 700 on Tuesday after the cytogam & steroids last weekend. Her fever was gone and her tonsils are much much smaller. You can actually see between them. The Doctors were prepared to let her go home on oral valganciclovir yesterday providing the numbers were lower than 700. They wanted to make sure the low count wasn’t a fluke because of the cytogam. Well guess what……it was a fluke. The count yesterday was 3800.  Needless to say she is still in the hospital. They are going to repeat the test Monday. I forsee a higher number. The genotyping of the virus should be back next week. That will tell us if it’s a resistant strain of CMV. My money is on resistant. She’s been on the ganciclovir for 2 weeks now and without the cytogam her numbers keep increasing. From there I don’t know what the plan is. Honestly I don’t think the doctors know either. Her birthday is Friday and they say they want to have her out by her birthday. I’m not counting on it.

She has a biopsy Monday so I’ll probably update again Monday night or Tuesday…….from the hospital since that’s where we live again. Please have my mail forwarded.

Comments 3 Comments »

Last week I saw an interesting project starting online. It’s called Why Moms Matter. I saw it and said… Oooh I know someone.

Right away I KNEW my sister was a mom that mattered. She’s been a huge inspiration to me and I’ve watched her grow and change so much in the last year and I could not be more in awe of her strength and her beauty and how she’s handled everything that has been given to her – whether it’s something she’s wanted or not.

You could assume that this has to with Zoe but in so many ways it does and in just the same number of ways, it doesn’t. On one hand, I can’t imagine what it’s been like to be in her shoes now or when Zoe first got sick as a baby. On the other hand, I’ve always known how amazing she is and continues to be and I always tell people, “You should meet my sister. She’s awesome”.

Chrissy is beautiful. Hands down. The thing is that I wanted the world to know how fanfreakintabulous she is.

So back to the Why Moms Matter – I had to nominate Chrissy. I’ve always been in awe – she’s always been MY HERO, she completely ROCKS in my kids eyes (she’s far cooler than I am), and I can’t imagine her not in my life. I feel immensely blessed to have her for a sister.

I can go on and on about my sister but I’m afraid if I do, she’ll come along and delete this post… so I better get to the point.

The people behind the project Joshua Unfried and Danielle Smith (no relation that I know of!) has selected Chrissy to be their first recipient of their Why Moms Matter project. I got the email at three in the morning and almost woke up the house.

Now for the most amazing and unbelievable part – We will be on Blog Talk Radio tomorrow (Friday March  6th) at 3:30 EST. You can listen to Chrissy and I talk (HA!) HERE. Plus, my sister will be featured at Extraordinary Mommy tomorrow also.

Since I know it’s impossible for everyone to meet Chrissy, this is the next best thing I could do to share her with the world. I’m hoping she doesn’t mind too much.

Comments 4 Comments »