Zoe has been doing really well since her last bout of CMV. Her PIC line came out mid June and every CMV test we’ve had since has been negative.

She had an appointment with Dr. Boyle yesterday. Everything is fine for once. She’s due for a biopsy in about 3 weeks.

Her turoring is going well. She has her last session tomorrow. She’s worked very hard and will be a 2nd grader on September 1st when school starts again.

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It is with a very heavy heart that I post today. Early this morning Alexandra Courville passed away. She was Zoe’s friend who received her new heart 2 weeks before Zoe got hers. Aly had been back in the hospital for the last 6 months. Her new heart wasn’t working out and she had recently been re-listed. She suffered a stroke earlier this year & had undergone brain surgery in May or June (I don’t remember exactly). Her kidneys had failed and she was removed from the transplant list because her body was simply too week. Yesterday she made the decision to be put on a mechanical heart, The Berlin Heart http://www.childrensmemorial.org/depts/cardio/thoracic/berlin-heart.aspx, to sustain her while she regained strength enough to be put back on the list. Aly didn’t survive the procedure.

My family holds Aly’s family fondly in our thoughts. Aly was the strongest, bravest person I’ve ever met and she was only 15. She is greatly missed.

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