I quickly just read an old post from the archives from November and I have something to add to my last post.
Children read this site so I try to keep clean when I’m mad about something. Those who know me understand how hard that is sometimes. This isn’t the first time someone hasn’t liked what they’ve read here. I have something I need to say to those people and the people like them. Build a bridge and get over it! You don’t get to sit behind your computer and judge me. I will not apologize to you or anyone else for who I am and what I say. Who I am helped make my daughter who she is and who she is helped her survive. Unless you’ve been though what we’ve been through, you’re opinion counts for squat. You can take that opinion and I think you know where you can put it. If you don’t, ask. I’m happy to point you in the right direction. I very nearly lost my child. I spent more than a month knowing she was scared and watching her suffer and slip away from me and there was NOTHING I could do about it. I don’t wish that on anyone. If your children are healthy, hug them and give thanks to whom ever it is you give thanks to, but don’t come here and pass judgement.
Everyday I look at Zoe and I’m thankful for her. I kiss her and tell her I love her every chance I get and she never gets tired of it. So instead of getting your panties in a bunch about something you read here (no one makes you visit the site by the way), re-direct your energy. Stop being angry about stuff you can’t control or change and be happy for what you have even if it isn’t everything you hoped it would be.
To Zoe’s faithful supporters: Thank you (again) for letting me vent. Zoe & I are glad you still care.
1 Comment »
I do have a short update from Zoe’s appointment with Dr. Boyle last week, but first I have an issue I need to address regarding zoesheart.com.
It has been brought to my attention recently that a portion of my last post offended someone. This individual was appalled at the idea of Gabe being left in charge of 2 little girls on an airplane. The little winky face at the end of the sentence was obviously missed and my sense of humor misinterpreted. Rest assured concerned citizen, Gabe will not be left in charge of ANYONE (including himself) on the flight to Disney. Steps will be taken to ensure that ALL minors on the trip will be monitored continuously by one or both of the adults traveling with them. I hope this puts all minds at ease.
That said, I feel I need to add something in regards to the content found on this web site. As most of you know, this site was started by my sister as a method of letting me update everyone at once on Zoe’s condition while in the hospital. As she continues to improve I update less and less. This was my goal all along as no news is good news where Zoe and her heart are concerned. The opinions expressed on this site are solely my opinions. They do not reflect those of anyone else nor are my opinions meant to be taken as fact. They are what they and nothing more. If something I say here offends anyone or anyone takes issue with anything here please contact me via this site. All comments are approved by Nikki or myself before being put on the site. If you have a more direct method of getting in touch with me, I encourage you to do so.
Now the quick update. Zoe is now 4′1″ and weighs 56lbs. That’s impressive considering at transplant she weighed 34lbs. Dr. Boyle gave no travel or ride restrictions for Disney. My little dare-devil couldn’t be happier. Her next biopsy is in April and she’s due to have her Prograf levels checked before then.
1 Comment »
Tiny Dancer
Dance classes have resumed. It’s been 2 years since Zoe has been well enough to dance. She’s back in ballet (which is a contact sport for those who aren’t dance moms) on Saturday mornings and she’s added tap this time around which she does Monday evenings. She will be dancing in the big recital in June and she’s very excited. She still has her costume from 2007.
All is going well. She has an appointment to see Dr. Boyle next Thursday for her follow-up and her next biopsy will be in April. She’s decided that when we go to the Clinic next week we’re going to take some stuffed animals with us to donate to the hospital. She has so many and knows how important they were to her in the hospital. She wants to make some other kids happy too.
School is going well for her but I think I need to invest in a tutor. She missed so much last year and even though she worked so hard to get to the 2nd grade it’s beginning to catch up to her. She’s starting to struggle and it’s frustrating for her.
We’ve planned a trip to Disney World in April during spring break. Myself, Gabe, Zoe, a family friend and his daughter are all going. We’re staying at the Nickelodeon Family Suites in Orlando. Our friend has never flown (and is terrified) and I get air sick if I’m awake so this should be an interesting trip. Gabe may be in charge of the girls on the plane. 
No Comments »
Entries (RSS)