I’ve known for awhile now that zoesheart.com has a stalker, and I don’t mean the kind who hangs out and reads because they genuinely care but never comments. I’m ok with that kind of stalker, but that’s not what we have here. What we have here is someone who doesn’t care about Zoe or her struggles/milestones (we have one coming up but I’ll post separately about that). This person searches the site, and occasionally lurks at sites I’ve linked to here all in a effort to get to me and make my life difficult. They have a battle going on and while Zoe is certainly not a part of that, neither am I in all honesty, they have decided to make her a part of it by trying to use zoesheart.com to further their own agenda. In their twisted reality bringing someones child into a fight is acceptable. Well, I’ve got news for them, it’s not acceptable in mine and I’m going to do everything in my power to stop them.

That said, there are going to be some changes made to zoesheart.com in the near future. Subscribers to the site should be hearing from either Nikki or myself shortly with the changes and what it means to you as a faithful Zoe follower.

I apologize for any inconvience this may cause but I can’t let someone bring Zoe or this site into something they don’t have any business being part of. I appreciate all of your continued support.

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Zoe had her biopsy on May 3rd. Her results were double 0′s again so that’sgood news.  Despite the good results our recent trip to the clinic was a comedy of errors and Zoe and I are now accomplished “waiters” (and I don’t mean restaurant type waiters).  Zoe wasn’t first on the schedule so we didn’t have to be there until 8am and we arrived right on time. After waiting in the surgical waiting area for 2 hours we found out that the computers in the peds cath lab went down so all the equipment had to be taken to another building to the adult cath lab and they were moving all peds patients there for their procedures.  We finally get taken back to pre-op at noon and Zoe was in the cath lab and asleep at 1:45, nearly 6 hours late. Normally we’re home between 4 and 5 on biopsy days but due to the craziness that was the Cleveland Clinic that day we didn’t get home until 7. Her results were perfect and Dr. Boyle is pleased so it makes the waiting we did worth while and Zoe was very well behaved while we waited. I was very proud of her.

During our wait another nurse from the transplant team, Jennifer, came to hangout and do a sleep study for peds heart patients. I answered some questions about Zoe’s sleep habits and Zoe and Jennifer answered some more general questions about Zoe and her health.  One of the questions Jennifer asked was “Do you get embarrassed about your scar”, or something to that effect. Zoe’s response was, “Nope. I don’t care if people see my scar.” I’m really proud of that response. Growing up, my sister was embarrassed of hers and I’ve tried really hard since the transplant to make sure Zoe is proud of hers. It’s a symbol of her second chance at life. Not many people get that opportunity and I want her to be proud of it. I think she is. She doesn’t mind showing it off and she doesn’t mind answering questions about it. About a month ago, on our way into dance a little girl coming down the stairs saw her scar and stopped her and asked what it was from. Zoe said, very simply, “Oh, that’s from my heart transplant” and she continued up the stairs. I didn’t want to draw attention to it so I just smiled and followed her up the stairs. I was giving her a nice mental pat-on-the-back though.

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